Sunday, April 13, 2014

Gratitude Sunday

Joining in with Taryn for Gratitude Sunday.
Sunday's heartfelt tradition. A time to slow down, to reflect, to be  grateful.

Grateful that we are only required to handle one day at a time. 

We began a special journey 19 years ago. 
16 years ago we had tests, we had a diagnosis, we had a label. 
A rare label, But a label. 
A label that will forever influence what those around
him think of him. It has been hard. The worry has been deep.

We are at the beginning of another new, unexplored road on our journey.
A place where I take off my advocate hat and put on my momma hat.
As an advocate, I am strong, put-together, demanding, 
As a momma, I am a blubbering, weepy mess!
As a momma, the future what if's can become so overwhelming,

I have been thinking ahead, several years into the future, trying to grasp every
experience, heartache and hardship into this moment, right now
"Borrowing worry" as my husband calls it.
struggling with just trying to breath when it all seems to become too much.

But then he pointed out, that luckily, a whole lifetime of  "what ifs"
aren't going to knock on our door tomorrow. 
They are going to come one day at a time,
just like they have for the last 19 years. 
We will wake up on the hard days after sleepless nights and
 deal with that one day head on.
Whatever its challenges.  We will meet them.

Some days will know their share of heartache. 
but just like everyday... they will also be full of all lovely, good things
 and the people we adore and happiness and laughter and our
"everydayness" that we love so much.

We will handle one day at a time with all it's challenges and
realize it will all be okay. 
He will continue to be the blessing that he is, just as he is.
He will continue to become who he was always meant to be.
"and the day came when the risk to remain tight in a bud
was more painful than the risk it took to blossom."
Anais Nin


  1. Beautiful words, Robbie.

    May peace be with you.

  2. You are so right, all we can do is take one day at a time and one challenge at a time and deal with them as we come along. I understand what you mean about the difference between being an advocate and a loved one, the first is so much easier than the second - not that either is easy of course! I hope that you keep finding your way through. Take care. xx

  3. Sending love and light to you, for each step on your journey.